10 Things About My Invisible Illness You May Not Know

10 Things
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10 Things You Don't Know About Me

1. I had symptoms since 2002
2. The Number of Doctors I have seen: 9
3. The biggest adjustment I’ve had to make is: Learning to deal with the fact that I’m not perfect
4. Something I never thought I could do with the illness that I did was: Complete a 10-day 70+ mile trek at Philmont with my son and his Boy Scout crew in 2010
5. Each day I take 8-10 pills & vitamins
6. My illness has taught me: I am actually not invincible
7. If I had to choose between an invisible illness or a visible I would choose: Visible, I feel as if people would at least have proof of your illness.
8. Most people assume: I think a lot of people are in denial that I’m actually sick
9. Something I really miss doing since I got sick: Being me, I was always on the go, I was an energizer bunny back then
10. Regarding working and career: I hide my pain daily from my co-workers and bosses


  1. Avatar photo MissUnderstood says:

    1. 2002, that is a very long time to go without a diagnosis. Stay strong, you have this.
    2. Nine doctors aren’t too bad. I had to see 5 to get my diagnosis
    3. We are never perfect, only God is perfect, just be you.
    4. 70 miles in 10 days, nope, not something I want to ever try.
    5. Taking pills sucks, there is nothing easy about it.
    6. Not being invincible is a hard pill to swallow for me.
    7. I agree people think you are crazy when you have an invisible illness
    8. Yes, many people are in denial about many things, my husband included.
    9. I was never the energizer bunny, but I do miss being on the go all the time.
    10. I kept mine hidden for many years too.

  2. Yep for me, learning that I’m not invincible and no longer made out of Kevlar was a hard one to swallow.

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